Tuesday, November 25, 2014

Life with Dysautonomia

Throughout my blog, I will be talking about POTS and Dysautonomia, so here is a quick rundown of the disease!

In the Fall of 2014, I was diagnosed with a form of Dysautonomia called Hyperadrenergic Postural Orthostatic Tachycardia.

What is it?
Dysautonomia is a form of neuropathy that affects the nerves that carry information from the brain and spinal cord to various organs throughout the body. My specific form of Dysautonomia, Hyperadrenergic Postural Orthostatic Tachycardia or HyperPOTS, is very rare and not much information is known about it. What we do know is that it is thought to be a genetic disorder passed from mother to child and comes from an excess of adrenaline in the body.

What does it look like?
For the most part, I look like any other person. I wear a medical alert bracelet on my left wrist and sometimes use a wheelchair if I need it.

What does it feel like?
To put it in a word: tired. Fatigue is a major side effect along with syncope (fainting), migraine headaches, anxiety. difficulty in digestion, difficulty in adapting to different temperature, heart palpitations and tremors.

To learn more, click here!

No comments:

Post a Comment